HEARTBREAKING: BABY WHO FORGETS TO BREATHE – Little Jess Kerr is without doubt an adorable and beautiful bundle of joy but tragically Jess as a condition known as Patau Syndrome (see Wikipedia) which causes her to stop breathing.
Jess is just one year old and for her parents, Melanie and Simon Kerr, keeping Jess alive involves 24 hour surveillance.
Jess’s condition is extremely rare and according to doctors only 200 babies in the UK per year suffer from the condition.
Due to the condition Jess basically forgets to breathe and within less than a minute she turns blue and it is the job of her parents to keep vigil so that they can resuscitate her each time she stops breathing; which can be over five times a day.
There is hope… doctors have told Melanie and Simon that there is an 85% chance of Jess will become healthy but the worry continues to plague them that Jess might succumb to her condition if not heavily monitored.
“We have to take each day as it comes, although it is very difficult. Jess is absolutely beautiful.” Melanie and Simon Kerr
Initially after Jess was born doctor’s told Melanie and Simon that many babies with Patau Syndrome didn’t survive; this was mainly due to a lapse in monitoring which can occur so easily due to the unpredictable nature of the condition and when a child stops breathing.
Melanie told reporters that she was heartbroken when the news of Jess’s condition was revealed shortly after birth and that how she had to explain it to Simon over the phone as he was away serving in Afghanistan.
According to medical experts many babies suffering with Patau Syndrome are lost during pregnancy and of those who do survive are often lost within a few days.
The condition relates to copies of chromosome 13 in the cells, normally there are just two in normal cells however Jess has three. This extra chromosome effectively means that Jess literally forgets to breathe.
Despite Jess’s condition and usual prognosis she has now turned one year old and she certainly is a beautiful baby that any parent would be so proud of. Melinda and Simon’s love for their daughter certainly shines through considering the high level of care required to keep Jess alive.
At meebal.com we certainly hope Jess has a wonderful birthday and that there will be many, many more to come.